february 04, 2007 11:23am
Court Hearing
I recently went to a court hearing for Dr. Jones. I was unhappy to see that only 39 people where there and besides me and my brother only a few other were kids. I know that Dr. Jones has treated and saved the lives, including myself, of over 6,000 children and for only a few to show up is sad. I no that it was on a school day which makes it difficult, but my mom, my brother, and I made the three and a half hour trip despite that fact it was a school day. I feel that we need to have more people show up at these hearings, especially the kids he has treated. and give Dr. Jones the support he deserves for helping so many of us.
On another note we only need 1466 more signature on our guestbook by the end of may so continue to pass the information on to anyone you no and have them sign the guestbook.
january 21, 2007 12:31pm
Let Me Introduce Myself
Thank you for coming to my site. I thought you might want to know who I am. My name is Devin and I am 15 years old. I live in Northwest New Jersey. Lyme has affected my life since I was a year old. That is when my dad fist got sick. Luckily, he had a bulls eye, but he was not treated long enough. A couple of years later my mother and brother got sick as well. It took three years for them to be properly diagnosed. I was eleven when I first got sick. I started to have panic attacks and was unable to sleep. Even with all of our background knowledge of Lyme, my mother was unable to tell that I had it. Luckily for us, we have an outstanding Lyme specialist that we travel three hours to see. We are all now off medication and doing well. In all these years, I have noticed that nothing has changed in what the majority of people know about Lyme. There is still a major controversy within the medical community on how to diagnose and treat it. This is the main reason why I made this site because we need to protect ourselves against a very painful and misunderstood disease. I hope that you find my site very informative and helpful. I would appreciate it if you would help me reach my goal of 1,500 signatures in my guestbook by the end of May.
Devin
february 04, 2007 11:26am
My Mistake..
On my last entry i posted that we still needed 1466 signatures but we only really need 1366 thanks to everyone who has already signed.
march 05, 2007 04:57pm
3/6/07
Thanks to everyone who has and who will sign my guestbook. I have gotten some great entries and feedback. I have sent out emails to every governor and have already gotten some responses. Next I'm going to email the senators and house. In reading the entries, I realize just how lucky I am to be better and hope that this will help to get answers to the lyme problem. I found a powerful clip from an upcoming documentary on lyme (thanks Jessica). Here is that link:
http://vids.myspace.com/index.cfm?fuseaction=vids.individual&videoid=889831055
Keep my email going - only 1155 more signatures to go!
march 17, 2007 02:51pm
Two Little Known Facts
As I am getting more and more feedback, there are 2 issues that I see as the most important when discussing Lyme.
People not only need to be educated on Lyme, but also on the fact that there is no accurate diagnostic test. People are under the assumption that if their Lyme test is negative, they don't have it or are better. This is directly off the CDC website - "Several forms of laboratory testing for Lyme disease are available, some of which have not been adequately validated. Most recommended tests are blood tests that measure antibodies made in response to the infection. These tests may be falsely negative in patients with early disease, but they are quite reliable for diagnosing later stages of disease." In fact, everyone agrees we don't have an accurate test. Educating people about that is very important so they have all the facts when trying to take care of themselves.
The second issue is the co-infections. Most people have never heard of babesiosis, bartonella, mycoplasma, or ehrilichiosis and most doctors don't test for them. These can really complicate a Lyme patient's recovery. My Lyme was first treated and then I started getting sick again. Mycoplasma then showed up in my blood work which needed to be treated differently then Lyme. My mom had bartonella which again didn't show up until she was treated for Lyme. That is why it is important to see a doctor who knows a lot about tick-borne illnesses.
Keep signing!
